We went to the Loogootee pool sunday eve. with the Lengacher family, it was fun. Jayce went of the diving board for the first time and LOVED it, he went off over and over! Plus they both went of the slide. I didn't take much time to take pics and I missed poor little mya!
Jayce had an all-star tourney 2 weekends ago which was VERY VERY warm. But we had fun.
3 weekends ago we went to Big Splash in French Lick, my kids absolutely love to go there. Haily cried when we had to leave. Which that was pretty much the first fun thing we did this summer since she was sick and she usually does not act like that.
One very happy girl. Love this pic!!
trying to sit on the spraying water:)
Hailey is behind daddy, hard to see the little thing
4 weekends ago we put away corn. LOTS of corn, yummy. I love freezing corn each year though, we can get together and do it with family.
YUMMY!!
Jayce really did help, he loves to help us work.
We went back to Riley for Hailey's check-up again Tues. and since the HSP seems to be not quite as active, we are trying to reduce the predisolone some. Hopefully it will work. Last night finally at 8 the doc called with blood and urine test results. Not such great news. Her levels are pretty much the same as 2 weeks ago, which since the hsp was really active he knew the levels were high but was hoping it was because of the very active hsp. Now she has not had rash or seemed to be having any joint pain this time. he says that is extremly high and needs to be gotten down as soon as possible, will cause kidney damage. So he is completely doubling the Lisinopril (blood pressure med). Which they had told us was the most they wanted to give her:( To get the protein down in her urine. I was down a little last night and at times this morn. I start to but like a friend told me God is setting himself up to be glorified. we just need to hang on for the ride. We are still trusting and praising God!!
God Bless,
Sonya
3 comments:
My goodness you are one strong momma!! I would be a mess by now I'm sure!! I will continue to pray for that sweetheart!
Praying for healing for Hailey!
You are an amazing mommy with such strong faith. I think it is okay to get down sometimes....it's a way to cope with everything. You def. seem like the rock in the family! So glad you have been getting lots of swimming in and having fun.
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