I am getting really bad about updating! We have had lots of fun these last few weeks, trying to do as much as we can before school:) Last Sunday we went to Holiday World and it was a beautiful day, weather was perfect and not extremly busy. John, Jayce and Hailey rode ALL the big rides. Hailey's first year to be able to and she LOVED it!! Yes doc gave permission which she noticed the signs on each ride, (are you sure mom it says I can't). I only rode the raven, will NOT ride the other two, and I did ride the wildabeast and pilgrims plunge(YIKES) so not like me, but the kids wanted me to so I did it JUST for them:) Mya had fun with all the kiddy rides also.
I know I always end the post with updating on Hailey, maybe everyone is tired of hearing it. But I would like to ask for more prayers, she has been really struggling this week. BP dropping REALLY low making her almost pass out and sick, trying to adjust it where she still can have a normal bp but needs as much Lisinopril as she can possibly handle to get protien in urine down:( This morning we had to leave church because she got sick again. I am really getting anxious about school starting in 3 days!! How am I going to send my girl to school when she keeps getting sick and bp not right! Please pray that this anxiety will subside and she will be doing well enough to start school on time. Thank You so much,
Sonya

Lots of pictures, and update on Hailey

This is mostly a picture update! LOTS and LOTS:) We have been busy. And they are backwards.
We went to the Loogootee pool sunday eve. with the Lengacher family, it was fun. Jayce went of the diving board for the first time and LOVED it, he went off over and over! Plus they both went of the slide. I didn't take much time to take pics and I missed poor little mya!



Jayce had an all-star tourney 2 weekends ago which was VERY VERY warm. But we had fun.

3 weekends ago we went to Big Splash in French Lick, my kids absolutely love to go there. Haily cried when we had to leave. Which that was pretty much the first fun thing we did this summer since she was sick and she usually does not act like that.

One very happy girl. Love this pic!!

trying to sit on the spraying water:)

Hailey is behind daddy, hard to see the little thing







4 weekends ago we put away corn. LOTS of corn, yummy. I love freezing corn each year though, we can get together and do it with family.

YUMMY!!

Jayce really did help, he loves to help us work.

We went back to Riley for Hailey's check-up again Tues. and since the HSP seems to be not quite as active, we are trying to reduce the predisolone some. Hopefully it will work. Last night finally at 8 the doc called with blood and urine test results. Not such great news. Her levels are pretty much the same as 2 weeks ago, which since the hsp was really active he knew the levels were high but was hoping it was because of the very active hsp. Now she has not had rash or seemed to be having any joint pain this time. he says that is extremly high and needs to be gotten down as soon as possible, will cause kidney damage. So he is completely doubling the Lisinopril (blood pressure med). Which they had told us was the most they wanted to give her:( To get the protein down in her urine. I was down a little last night and at times this morn. I start to but like a friend told me God is setting himself up to be glorified. we just need to hang on for the ride. We are still trusting and praising God!!

God Bless,

Sonya

Faithful Prayer

Well I wrote this blog out on Sunday night and had not posted it yet. When I went to look at blogs this morning The verse of the day stood out to me! It is the same verse i had in my post. I feel that God was nudging me along to post this:)


I have not blogged in awhile about Hailey, she feels good and rarely has pain if she does it's nothing like before. The steroids are suppose to be helping with that, and her blood pressure is under control with the medication. We went back to Riley Tues. of this week and They did more blood work and Urine test and it was a little worse in both. So her kidney's are still getting it hard. I am relieved that she feels so good though. Since the test came worse again we decided to anoint Hailey.
James 5:14-15 says Is any sick among you? let him call for the elders of the church; and let them pray over him, anointing him with oil in the name of the Lord: And the prayer of faith shall save the sick, and the Lord shall raise him up;

The preachers of our church came to our home last evening. We did it in our home to make Hailey more comfortable, it could be confusing and scary for a little girl to stand in front of many people on a Sunday. She did so well and she understood why and what we were doing. Praise God, we feel so at peace, God is in control and we will do whatever he has in store for her and us as a family. He is there and will get us through. I can't believe how I, myself have changed through all this, I feel so calm and sure, God is here with us and he will take care of my baby no matter what. I struggled with anxiety with this virus at the beginning and now I feel so calm. Thank you Kevin, Amanda, Carmen and Joanna for coming to our home and praying with us and anointing our sweet Hailey.

God Bless,

Sonya

What a wonderful weekend it has been, spending time with family:) We were all together and HOME that made it perfect. God is so good he is taking care of my baby girl and I know that, even though it is hard to see her go through all this, this summer. We just came home from doing more bloodwork in bedford today and let me tell ya I have a trooper. She even smiled during the procedure. What a sweetie. We will not get the results back until Thurs. or Fri. The urine test still showed a large level of blood and high in protein.:( Which is not good for her kidney's. They are hoping it lets up on her kidney's soon or we will be doing another biopsy to check for kidney damage. Her BP is STILL acting up also. She is on the max dose of Lisinopril so now they are adding a water pill to try and help some. I have been watching her salt intake very carefully and she is hardly getting any. We are praying that this virus lets up soon.
On other news:) We had a good weekend. Went to my parents to watch fireworks Fri. night. Sat. night we went to washington and watched those. Kids loved it. We have to take it easy which is hard since it's summer but we try to do little things for them. This is the first year since Jayce was born that we could not go to a fair. But we took and blanket and had a picnic and just relaxed. They enjoyed it anyway. She got wore out right away again. She had even had a 2 hr. nap that day.



Sunday we had lunch at mom and dad's and then after we napped we went to see toy story 3. It was really good.

Our dog had puppies. And they are very very cute.!! Kids are loving it, especially miss Mya!
We have 2 so if you need a puppy let us know. It will be hard to get rid of them but we do not need 3 dogs around here.

Had to get a pic of Jayce, he never wants one taken:)

My sweet girlies with a puppy!


Have a wonderful week and God Bless,

Sonya

God is a Miracle Worker!!

Praise be to God! We have WONDERFUL news, Hailey's biopsy showed no signs of scarring. The Doc was shocked. He was so very sure there would be kidney damage with all the signs and urine and culture and blood tests. And because of her high blood pressure. We knew he was only giving us a 10% chance of hope. But we knew God could work a miracle if he chose to. And he chose to give Hailey a miracle. We are so happy and I want to share it with everyone. Hoping this will all be used in some way for God.
Hailey is feeling well, her blood pressure is still a little too high, may have to increase the bp meds a little, her vision is pretty blurry because of the steroids. But she is such a strong little girl. Feeling well and taken everything in strie. hopefully we can make it to watch fireworks this weekend.
God Bless,
Sonya

Home Sweet Home

We are HOME!! And it feels wonderful:) God is so good! It is absolutely Gorgeous out today! Hailey and Mya are taking a nap. The kidney biopsy went well, we will not find the results out for 3 to 5 days. So for now we are just giving her meds to control the HSP symptems. After we find out the results of the biopsy we will know more what kind of plan to follow. Her BP was up when we left again yest. so they uped her BP medicine again. now she takes 7.5mg per day. She is still on steroids which makes her HYPER and swollen and HUNGRY! She is suppose to take it very easy for a whole week because of her biopsy and please tell me how to keep a 6 year old on predislone down for that long?!! I have a few pics.



Here's John and Hailey just watching tv

Mommy reading her a book! Day after biopsy



I think this was soon after the biopsy pretty groggy.



My parents brought the kids and John's parents to visit on Sat. and Sun morn. It was so good to see my babies. I have missed the others soooo much!They all had to sit or lay in hailey's bed.
Oh and funny story they were laying here like this and the nurse came in to take Hailey's vitals, and she said oh my how will I know which is the patient and let me tell ya Jayce jumped out of the bed soooo fast it was hillarious. Pointing at her the whole time. Little stinker, I'm not sure how either of my other two would handle and experience like this. Nothing like Hailey I am sure.

Before we went to Riley Hospital Jessica's girls came over for a little visit and a tea party. Hailey was so excited and it did her a lot of good. Here she was all dressed up waiting for them to come. And yes she was very swollen in this pic. But beautiful!






Grace, Isabelle, Mya and Hailey





Mya playing on the porch Before the tea party

Today when I was goin to put pics on I looked through my pics and Hailey must have taken some this morning it was so sweet I saw lots of pic's like this:)


My beautiful princess!!
She has been such a trooper through all of this and so calm, most of the time. God has a plan for her and us and we are just waiting to see what it is. We do know that she LOVED all the nurses and they LOVED her. She wants to be a nurse someday!! Maybe God showed her through this.

Jayce's team lost the first game of the playoff's, and I am so sad I could not see it. He loved playing baseball this year. I am very proud of him for playing as hard as he did.

Hailey's kidney biopsy is set for today at 1:30. we are waiting and she says she is STARVING! But in pretty good humor most of the time. Had a couple break downs. Her BP has been high yet today again. They have had to give instant bp meds 2wice already in just 3 hours. I'm not sure whats going on they had uped the regular bp meds.

Otherwise Jayce has his playoff baseball game tonight and I am very sad that I have to miss it. Hoping he does well even with everything going on. He does well most of the time, you can see it gets to him sometimes. Like I said Him and Mya are well taken care of.